SYDNEY’S BLOODY LONG WALK TO BEAT MITO
More than 1,650 residents from across Sydney will walk 35km this Sunday (13 November) to raise funds for the Mito Foundation.
Sunday marks the sixth time The Bloody Long Walk has taken place in the Eastern Sydney region and residents have already raised more than $170,000, with a goal of reaching $300,000.
The walk kicks off at Pioneers Park in Malabar, passing the beaches of Coogee and Bondi, circling the iconic Opera House before ending in The Rocks.
Mitochondrial disease (mito) is a debilitating, potentially fatal, genetic disorder that robs the body’s cells of the energy they need to function properly.
Participants will walk for more than seven hours, clocking up nearly 47,000 steps, all in support of raising funds and awareness for the Mito Foundation and its goal to end mitochondrial disease.
Manly resident Martin Burton has completed the last five Bloody Long Walks in Sydney North in support of his son Luke who was diagnosed with mito 13 years ago, and will tackle the Sydney Easy course for the first time this Sunday.
“When Luke was a child we noticed his growth was slower than his peers, and he was showing some physical signs that led us to the diagnosis of mito,” Martin said.
“Like any parent, we wanted to support Luke as best we could, while also doing anything possible to help find a cure. That led us to the Mito Foundation and I threw myself into participating in the Bloody Long Walks.
“Luke is now 26 years old and I can honestly say that the Mito Foundation has helped him live his life to the fullest. Our family needs the foundation’s support more now than ever, and the Bloody Long Walk is how we give back to the Foundation.
“Our team has raised more than $12,000 so far, but we want to keep pushing and raise as much money as possible.”
Mito Foundation CEO, Sean Murray, said the event is part of a nationwide initiative which supports families affected by mito.
“We are very excited to bring the Bloody Long Walk to Sydney for the sixth time! So far, the response has been outstanding and registered teams and individuals have already raised more than $170,000 for the cause,” Mr Murray said.
“I’m looking forward to walking the event on Sunday and connecting with our local mito community members on the day.
“The truth is every week in Australia one child will be born who will develop a life-threatening form of mito – that’s 50 Aussie kids a year.
“Sadly, most children diagnosed with a serious form of mito die in the first five years of their life.
“Yet most people have no idea the disease even exists.
“All money raised will help us deliver support services for patients and families facing this debilitating disease, while providing hope for the future by funding promising research projects.”
An estimated one in 200 people, or 120,000 Australians, may carry the genetic change that puts them at risk of developing mito, or passing it on to their children.
For more information about The Bloody Long Walk, to share your support, or contribute a donation, please go to: https://www.bloodylongwalk.com.au/sydney-east/
ABOUT MITOCHONDRIAL DISEASE:
- Mitochondrial disease (mito) is a debilitating genetic disorder that robs the body’s cells of energy, causing single or multiple organ dysfunction or failure, and potentially death.
- One Australian child born each week will develop a severe or life-threatening form of mitochondrial disease.
- Mitochondrial disease is terminal. There are no cures and few effective treatments.
- Mitochondrial disease affects 1 in 5000 people, making it one of the most commonly diagnosed, serious genetic diseases.
- 1 in 200 people, or more than 120,000 Australians, may carry genetic changes that put them at risk for developing mitochondrial disease related symptoms including diabetes, deafness or seizures during their lifetimes. Many of these people are symptomatic but undiagnosed or misdiagnosed, some are not yet symptomatic, and others are unknowingly at risk of passing the disease on to their children.
- There are many forms of mitochondrial disease; it is highly complex and can affect anyone at any age.